Speaking Tour

Speaking EventsI’ve been speaking publicly since 1986 when I first discovered I had epilepsy. I thought it important to rebel. Rebel against those who told me I shouldn’t ride a bike, play outside, talk to people about the fact that I had epilepsy. How would I rebel? By speaking out and clear and letting everyone and anyone know that where there's a will there's a way!!!
  • From 1988 - 1990 I was a spokesperson for the Epilepsy Foundation of America.
  • From 1990 - present I have been a spokesperson for the French Foundation for Research on Epilepsy.

Hello from NOVI MICHIGAN…

When: 
November 13, 2011
Where: 
Novi, Michigan

…where the Epilepsy Foundation of Michigan is hosting the Wellness and EPilepsy Conference-a two day event including a networking reception and health fair followed by sessions on various subjects ranging from improving seizure control and quality of life to nutrition and childhood epilepsy, epilepsy and physical health. for the full program go to www.epilepsymichigan.org

Two-time silver Olympic medalist will speak in Novi.

When: 
November 13, 2011
Where: 
Novi, Michigan

Two-time silver Olympic medalist will speak in Novi on Friday.
Cyclist Marion Clignet said if she wasn't diagnosed with epilepsy, she wouldn't be an Olympic medalist today.
Clignet was diagnosed with epilepsy in 1986 when she was 22 and had her first seizure.
For more of this story, click on or type the URL below:
theoaklandpress.com

From Sydney to Brisbane

When: 
October 5, 2011
Where: 
Australia

where I met The King again! The legendary rugby league player Wally Lewis was on hand to introduce me as a speaker.
I highly recomend his book "Out of the Shadows" telling Wally's personal battle with epilepsy and how he overcame epilepsy after 20 years of having seizures. Brisbane is quite active in epilepsy awareness and education.
It was a pleasure speaking there.

From Brisbane to Tasmania

When: 
October 5, 2011
Where: 
Australia

Much to my dismay I could only fly in to Taz for a lunch conference and then fly out the same day so I didn't see a whole lot of the gorgeous scenery I've heard so much about. I did, however meet some very active people all ready and willing to overcome the myths surrounding epilepsy. I also met a Elle, a 6 year old with epilepsy who's very motivated to be a future soccer star!

From Taz it was back to Melbourne for the ride4epilepsy where I was in extremely good company all day long, riding over 200 kms with a stop or two and in the Melbourne sunshine!
After the ride it was on to Perth where I recorded two interviews on local radio spoke to the local epilepsy foundation and met the lord mayor of Perth who depsite her busy scheduel found some time to meet with us.

A busy day in Sydney…

When: 
September 26, 2011
Where: 
Australia

this week Australia has launched an epilepsy awareness campaign all over the country in order to raise awareness on epilepsy. On september 25 there will be the first ever www.ride4epilepsy.com.au at the Sandown motor racecourse just outside of Melbourne. A recent longitudinal study funded by UCB and conducted via the Epilepsy Foundation of Victoria has shown that many people who have epilepsy suffer from exclusion and discrimination of some sort because of epilepsy. 1 in 100 Australians have epilepsy so it is time for a national campaign to make it's way into the national education system as well.

Mike Tomalaris catches up with Cycling Legend Marion Clignet to discuss her visit to Australia.

AUSTRALIA-from septembre 14-29

When: 
September 13, 2011
Where: 
Australia

Ill be traveling Australia with a message! Despite Epilepsy, where there's a will there's a way!
MELBOURNE- www.ride4epilepsy.com.au a team or individual event for 6 hours and who ever rides the most in that time wins!
SYDNEY-meeting with schools and the press
BRISBANE-discussing epilepsy
TASMANIA-info campaign on epilepsy
PERTH-info campaign on epilepsy.

2010 AOEC Asian Oceanic congress on Epilepsy

When: 
October 19, 2010
Where: 
Melbourne, Australia

In October the AOEC congress (Asian Oceanic Epilepsy Congress) will be taking place in Melbourne Australia and we'll be organising a cycling event in Melbourne on October 24th! More info to come soon!!

The Check!

When: 
October 23, 2009

MONDAY OCTOBER 19th THE CYCLOCLUB LARDENNE AND MYSELF HAD THE HONOR OF GIVING A CHECK FOR 9600 EUROS, THE BENEFITS OF OUR FUND RIDE TO THE FRENCH FOUNDATION FOR RESEARCH ON EPILEPSY. OUR NEXT FUND RIDE IS SCHEDUELED FOR MAY 29th! COME ONE COME ALL!!!!!!!

European Conference on epilepsy in Berlin and Ambassador summit in Bruxelles

When: 
September 27, 2008
Where: 
berlin to brussels

The mad dash started when I crossed the finish line in Lyon...I hailed a cab, went up to the auberge where we had stayed, showered, got in another cab and went to some friend's house who lived near the airport. They dropped me off and I was on my way to Berlin via two planes one of which would temporarily lose my luggage. par for the course.
I made it to Berlin quite late but just in time to meet the other speakers for dinner at the parliament. On the roof we could see the lights of Berlin but it was raining so we didnt stay on the rooftop too long and I couldnt get any good shots.

European Federarion of Neurological Sciences

When: 
September 23, 2008
Where: 
Madrid, Spain

Living with a Neurodegenerative Disorder:
the Questions We All Wanted to Ask But Never Dared to …
The EFNS is an organisation that unites and supports neurologists across the whole of Europe. It was founded in December 1991 in Vienna, Austria. Currently, 40 European national neurological societies are registered members of the EFNS. Thus the EFNS represents more than 12.000 European neurologists.

Languages

Gift Shop

Tenacious - €17,00

Marion Clignet with Benjamin Hovey. This book makes a great gift. All proceeds benefit epilepsy research through Sport4Therapie.
Buy Now

Archive